Well... the trial is over for me at least. The first of this month, we went to Chapel hill for the results of the CT scan and yep, that sneaky cancer has grown. So... on to the next thing. I am glad I gave it a shot though. Even if I still am enjoying the liquid poo even two weeks after the last dose was given. At least I gave it a shot, and maybe there will be a future trial that will be better at kicking cancers butt instead of opening the dam in mine.
So, we are on to Kadcyla, otherwise known as TDM-1. I may or may not lose my hair. I may or may not puke. Actually, the list of side effects says so many contradictory things, I think they just threw them all in to cover their bases; like I may have constipation or diarrhea. I am so used to having my bowels doing one or the other, I have forgotten what normal looks like. Watch me have a normal BM and call the doctor in a panic.
But enough about my butt.
The newest complication is fluid around my lungs. Yep... I can't get comfortable in any position because the fluid is on the lung in the side where i have lymphedema, so when I try to lay on that side, my arm screams in pain. Try to lay on the other side, I think I am drowning and I cough like I am dying. My stomach sleeping days are over, as the swelling in my chest makes that painful and forget laying on my back. I have trouble even washing my hair because laying on my back really makes it hard to breathe. So... in the tub, I lay on my bad swollen side and rinse my head the best I can, then roll the other way and get the other side really quick. Tonight I scared the snot out of myself trying to take my meds. You know how sometimes your drink goes down the wrong tube? Try having that happen as you are swallowing an inch long pill. I spit water everywhere, snorted it out my nose and could not stop coughing long enough to catch my breath. Then Michele had to hold me while I tried to calm down, all the while I am still gagging and coughing. I ended up sticking my head in the freezer because I have found that cold air does wonders when you can't breathe.
So the solution to this... sticking a big needle in my back and drawing out the fluid. Seriously?!? I mean really! I hate needles. Two years of chemo, scans and lab work has not changed the fact that I would almost rather drown in my own fluid than get yet another monster needle stuck in me. Especially since you are awake and sitting up while this happens. But after tonights scare, I plan to go ahead and ask the doctor about it. How long does it take? how long is the recovery? will I have a little fluid sac attached to me again like the lymph fluid drains? How long will I need to be out of work and geez... how the heck would I get to sleep with that thing in me?
So, we are on to Kadcyla, otherwise known as TDM-1. I may or may not lose my hair. I may or may not puke. Actually, the list of side effects says so many contradictory things, I think they just threw them all in to cover their bases; like I may have constipation or diarrhea. I am so used to having my bowels doing one or the other, I have forgotten what normal looks like. Watch me have a normal BM and call the doctor in a panic.
But enough about my butt.
The newest complication is fluid around my lungs. Yep... I can't get comfortable in any position because the fluid is on the lung in the side where i have lymphedema, so when I try to lay on that side, my arm screams in pain. Try to lay on the other side, I think I am drowning and I cough like I am dying. My stomach sleeping days are over, as the swelling in my chest makes that painful and forget laying on my back. I have trouble even washing my hair because laying on my back really makes it hard to breathe. So... in the tub, I lay on my bad swollen side and rinse my head the best I can, then roll the other way and get the other side really quick. Tonight I scared the snot out of myself trying to take my meds. You know how sometimes your drink goes down the wrong tube? Try having that happen as you are swallowing an inch long pill. I spit water everywhere, snorted it out my nose and could not stop coughing long enough to catch my breath. Then Michele had to hold me while I tried to calm down, all the while I am still gagging and coughing. I ended up sticking my head in the freezer because I have found that cold air does wonders when you can't breathe.
So the solution to this... sticking a big needle in my back and drawing out the fluid. Seriously?!? I mean really! I hate needles. Two years of chemo, scans and lab work has not changed the fact that I would almost rather drown in my own fluid than get yet another monster needle stuck in me. Especially since you are awake and sitting up while this happens. But after tonights scare, I plan to go ahead and ask the doctor about it. How long does it take? how long is the recovery? will I have a little fluid sac attached to me again like the lymph fluid drains? How long will I need to be out of work and geez... how the heck would I get to sleep with that thing in me?
Want me to come distract you during the procedure?
ReplyDeletenoooo.... I have to hold still and you would make me laugh, then the nurse would get mad and stick us both.
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